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Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

Resource type
Authors/contributors
Title
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Abstract
Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experiences with genetic research have been shaped by a series of negative interactions, there is increasing recognition that equitable benefits can only be realized through greater participation of Indigenous communities. Issues of trust, accountability and equity underpin Indigenous critiques of genetic research and the sharing of genomic data. This Perspectives article highlights identified issues for Indigenous communities around the sharing of genomic data and suggests principles and actions that genomic researchers can adopt to recognize community rights and interests in data.
Publication
Nature Reviews Genetics
Date
2020-06
Volume
21
Issue
6
Pages
377-384
Journal Abbr
Nat Rev Genet
Accessed
12/6/22, 12:06 PM
ISSN
1471-0064
Short Title
Rights, interests and expectations
Language
en
Library Catalog
License
2020 Springer Nature Limited
Citation
Hudson, M., Garrison, N. A., Sterling, R., Caron, N. R., Fox, K., Yracheta, J., Anderson, J., Wilcox, P., Arbour, L., Brown, A., Taualii, M., Kukutai, T., Haring, R., Te Aika, B., Baynam, G. S., Dearden, P. K., Chagné, D., Malhi, R. S., Garba, I., … Carroll, S. R. (2020). Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews Genetics, 21(6), 377–384. https://doi.org/10.1038/s41576-020-0228-x