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The current model of ethical governance in research involving humans in the social sciences and humanities relies on prospective ethics review in ensuring that research in conducted ethically. One of its key features is distrust to researchers and their initiatives regardless of the subject matter, discipline, research methodology or settings, sources of funding, or researcher's experience. This article discusses the New Brunswick Declaration on Research Ethics adopted by the participants of the Ethics Rupture: Alternatives to Research-Ethics Review Summit in 2013. In particular, it provides background for the regulatory capture of the social sciences by the biomedical institutions of ethics review. It concludes by examining the limitations of the Declaration, and offers a set of principles for the development of the New Brunswick Declaration following its discussion at the Ethics in Practice: Tensions around Ethics Review and Maori Consultation Conference at the University of Otago in Dunedin in May 2015.
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Maori tribal authorities have sought to measure the wellbeing of their people as a baseline for determining the extent to which their economic, social, and cultural goals are being achieved. In recent years, data from government-administered social surveys and/or censuses have become a significant source of information. Using the tribal authority of Te Runanga o Ngai Tahu (TRONT) as a case study, this paper explores and compares data concerning Ngai Tahu wellbeing contained in two recently completed TRONT reports: the Ngai Tahu State of the Nation 2015 report (a quantitative study derived from government-administered survey data); and, the preliminary findings from the Ngai Tahu Whenua Project (a qualitative study undertaken by TRONT). Both studies present similar results regarding levels of tribal economic wellbeing, however, they show different results in regards to levels of cultural wellbeing. The qualitative study reveals reasonably high levels of cultural engagement among participants. Conversely, the quantitative study demonstrates reasonably low levels of cultural engagement. The difference is explained in each study's approach to understanding culture. The quantitative study viewed culture as engagement in 'static' cultural practices, whereas the qualitative study viewed Maori culture as a 'lived' set of deep networks and connections between individuals, their whanau (extended family), and places of symbolic cultural importance (particularly land and water). It is argued that measuring 'lived' culture would provide a better means of ascertaining cultural wellbeing. It is suggested that a useful means of measuring Maori lived culture would be to determine the quality and depth of relational networks.
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- health
- colonisation (2)
- disparities (1)
- displacement (1)
- ethics (1)
- ethics committees (1)
- ethnicity (1)
- health outcomes (1)
- indigenous research ethics (1)
- Inequity (1)
- iwi (1)
- wellbeing (1)
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- Journal Article (3)