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In First World colonised nations such as Aotearoa New Zealand and Australia, population statistics form the evidentiary base for how Indigenous peoples are known and `managed' through state policy approaches. Yet, population statistics are not a neut
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Colonization fundamentally disrupted Indigenous knowledge systems, establishing epistemic hierarchies that privilege Eurocentric colonial epistemologies and methodologies. In this chapter, the authors explore how epistemic hierarchies are (re)produced in the current context of “big data” and datafication, in particular for mokopuna Māori in the nation-state known as New Zealand (NZ). (We use the concept of “mokopuna Māori” to refer to and position Māori babies, children, and young people within the Māori world as the sacred reflection of our ancestors and a blueprint for future generations.) The chapter then considers the possibilities for Indigenous epistemic justice in the “zone of nonbeing” or beyond the “abyssal line.”
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This book examines how Indigenous Peoples around the world are demanding greater data sovereignty, and challenging the ways in which governments have historically used Indigenous data to develop policies and programs. In the digital age, governments are increasingly dependent on data and data analytics to inform their policies and decision-making. However, Indigenous Peoples have often been the unwilling targets of policy interventions and have had little say over the collection, use and application of data about them, their lands and cultures. At the heart of Indigenous Peoples’ demands for change are the enduring aspirations of self-determination over their institutions, resources, knowledge and information systems. With contributors from Australia, Aotearoa New Zealand, North and South America and Europe, this book offers a rich account of the potential for Indigenous data sovereignty to support human flourishing and to protect against the ever-growing threats of data-related risks and harms.
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Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experiences with genetic research have been shaped by a series of negative interactions, there is increasing recognition that equitable benefits can only be realized through greater participation of Indigenous communities. Issues of trust, accountability and equity underpin Indigenous critiques of genetic research and the sharing of genomic data. This Perspectives article highlights identified issues for Indigenous communities around the sharing of genomic data and suggests principles and actions that genomic researchers can adopt to recognize community rights and interests in data.
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Topic
- data sovereignty
- colonial methodology (1)
- colonisation (3)
- crown law (1)
- crown policy (1)
- data (1)
- ethics (1)
- genes (1)
- genetic databases (1)
- genomic sequencing (1)
- heirarchy (1)
- identity (1)
- kaupapa māori (1)
- methodology (1)
- policy (2)
- population genetics (1)
- self-determination (2)
- statistics (1)
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